Do you know anyone in your family that has had colorectal cancer before? If so, you and other loved ones may be at risk to develop this deadly cancer in the future. You may benefit from genetic testing to see if there are steps you can take to minimize your risk of developing colorectal cancer. Learn more about colorectal cancer and family history.

Lynch Syndrome Testing

Lynch syndrome often increases your chance of developing colorectal cancer. According to the American Cancer Society, the lifetime risk of developing colorectal cancer with Lynch syndrome ranges from 10 to 80 percent.

One way to discover whether you should get tested for Lynch syndrome is through the Amsterdam criteria:

You have three or more relatives that have developed cancer linked with Lynch syndrome.
One of those relatives is a parent, sibling or child of the other two relatives.
At least two consecutive generations are affected by cancer.
At least one relative got cancer under 50-years-old.

If you or someone you know has Lynch syndrome, the screening guidelines recommend testing during the early 20s or two to five years younger than the youngest person in the family with a cancer diagnosis. Testing should also continue every one to two years to identify polyps at the earliest time.

Familial Adenomatous Polyposis Testing

Familial adenomatous polyposis (FAP) can cause polyps in the colorectal system, which may lead to colorectal cancer. If you have FAP, you may get polyps before the recommended screening time and lead to later detection. Genetic testing is available for those with FAP based on family history.

If you are diagnosed with FAP, screening guidelines recommend testing to start in the teenage years. The lifetime risk of developing colorectal cancer is almost guaranteed; many doctors recommend removing the colon in a person’s 20s to avoid colorectal cancer.

If you have a record of colorectal cancer and family history, reach out to your family practice physician to talk about screening today. Learn more about screening guidelines on our blog.


You’re invited to join us for the Early Age Onset Colorectal Cancer (EAO-CRC) VIRTUAL Summit™ on Thursday, April 23rd from 12:00 – 2:30 PM EST!

We want to thank all of our generous sponsors for sticking with us and making this happen!

Make your lunch and join us from 12:00 – 2:30 pm for the EAO-CRC VIRTUAL Summit

As some of you may already know, after careful consideration for the health and safety of patients, attendees, the entire cancer community, and global efforts to stem the COVID-19 (coronavirus) pandemic, the CCF Board of Directors made the difficult decision to postpone the in-person event.

As always, this event will feature renowned pioneers in epidemiology, experts in oncology and visionaries of health policy who are addressing early age onset colorectal cancer on the front lines. And, in keeping with tradition, you will have an opportunity to contribute to the conversation and engage in a LIVE dialogue with our panelists. Your voice will be heard.

An important addition to our agenda is COVID-19: The latest information on what all patients, caregivers and clinicians need to know from renowned experts.

We will examine 3 key questions you may have, including:

  • What are the top EAO-CRC emerging issues
  • What are the current and future impacts of COVID-19 on EAO-CRC
  • Staying laser-focused – what can I do?


  • Cindy R. Borassi, Colon Cancer Foundation
  • Renay Caldwell, Director of Navigation and Screening Services, University of South Carolina
  • Richard Fahrer, III, EAO-CRC Patient and Oncology Marketing Director, Patient Solutions, Pfizer Pharmaceuticals
  • Len Lichtenfeld, Deputy Chief Medical Officer, American Cancer Society
  • Whiney Jones, Founder, Colon Cancer Prevention Project
  • Krista Nelson, LCSW OSW-C BCD FAOSW, Program Manager, Quality & Research, Cancer Support Services & Compassion, Providence Cancer Institute & Providence St Joseph Health
  • Erin Peterson, EAO-CRC Summit ™ CO-HOST, Communications Director, Colon Cancer Coalition
  • Susan K. Peterson, PhD, MPH, Department of Behavioral Science, Division of Cancer Prevention and Population Sciences
  • Mark B. Pochapin, NYU Langone Health, President, American College of Gastroenterology
  • Rebecca Siegel, MPH, American Cancer Society
  • Zsofia Stadler, MD, Associate Professor, Clinical Director, Clinical Genetics Service, Memorial Sloan Kettering Cancer Center
  • Yi-Qian Nancy You, MD, MHSc, FACS, Department of Surgical Oncology, Division of Surgery, MD Anderson Cancer Center

I invite you to take the time today to register for the upcoming Virtual EAO-CRC Summit™ – you won’t regret it. Space is limited and on a first come first serve basis. Registration is free.